Patient Care Studies and Stories
Our patients' opinions matter the most to us. It's our mission to keep our patients healthy and happy
Not only do our Patient Care Coordinators keep in frequent contact with our patients, Nufactor regularly conducts patient satisfaction surveys to get valuable feedback on how we can improve our service quality.
Recent patient Stories:
#FearlessFriday | Gino, Nufactor Patient
Home state:
New Jersey
Diagnosis:
GBS (Miller Fisher syndrome) & CIDP.
When were you diagnosed?
September 2015
How long did it take to get diagnosed?
In the ER, maybe an hour for the first GBS. The second time, I knew at the onset of symptoms.
How long from diagnosis to starting intravenous immune globulin (IVIG) therapy?
A couple of days in the hospital, both bouts, then a few months after the second bout at home with IVIG for syndrome maintenance.
How has IVIG helped?
It has kept my symptoms at bay. I still have residual facial effects. Speech and eye movement compatibility, mostly.
What inspires you? What are your goals/ambitions?
I work at a college and the students inspire me. I want to live the fullest life I can!
Any additional comments/shares?
Nufactor has been a great partner in my disease management. I feel as though they are really in it with me and have my best interest in mind. It is comforting to know that Mary Chadd and company are in my corner!
#FearlessFriday | Kerri, Nufactor Patient
Home state:
Florida
Diagnosis:
CVID, CMID, Hashimoto's disease and asthma.
When were you diagnosed?
November 2013 with my first infusion in December 2013.
How long did it take to get diagnosed?
3 years and 6 months.
How long from diagnosis to starting intravenous immune globulin (IVIG) therapy?
1 month.
How has IVIG helped?
Increased energy with shorter duration of episodes from infection. Shorter spans — weeks down from months of not being able to talk; and my chronic cough has improved.
What inspires you? What are your goals/ambitions?
My life has changed dramatically but I've learned to enjoy and appreciate my good days! I have all the confidence in my doctor and feel that since the Right to Try Act has been signed, there will be many new meds and infusions that will help me become better and better. Basically, more good days ahead!
Any additional comments/shares?
I spent two years being infused in two separate cancer centers complaining about itching, red bumps, puffiness, and sweating as though I was in a sauna for two weeks after infusion. Here my latest and best doctor found I was allergic to my IVIG's. It's important to have a great doctor who knows what you are infusing so it is not causing unnecessary allergic reactions.
Recent patient testimonials:
The information provided on this website is not medical advice, nor is it intended to be a substitute for medical advice, diagnosis, and treatment. Always seek the advice of a physician or other qualified health provider with questions concerning a medical condition. Never disregard professional medical advice, or delay seeking it based on information provided on this website.
